Amelia Lake
Development of a series of patient information leaflets for constipation using a range of cognitive interview techniques: LIFELAX
Lake, Amelia; Speed, Chris; Brookes, Anna; Heaven, Ben; Adamson, Ashley; Moynihan, Paula; Corbett, Sally; McColl, Elaine
Authors
Chris Speed
Anna Brookes
Ben Heaven
Ashley Adamson
Paula Moynihan
Sally Corbett
Elaine McColl
Abstract
Background: The aim of the LIFELAX randomised controlled trial (diet and life style vs. laxatives in the management of chronic constipation) is to develop and evaluate a cost effective intervention to promote diet and lifestyle in the treatment and management of chronic constipation for older people in Primary Care. Constipation affects the quality of life in around 20% of older people in the community. In the 65 years plus population, a significant proportion of men and women both living in institutions (81% and 75% respectively) and free living (30% and 37% respectively) use laxatives. Approximately £42 million is spent each year on prescribed laxatives in England in addition to laxatives purchased over the counter. Although bowel problems are often multifactorial, diet and lifestyle have an extremely important role in their management. This paper describes one aspect of the main study, the development and piloting of the Patient information leaflets (PILs). Methods: Following review of the literature and interviews with practitioners and patients, 8 PILs were designed on: constipation, activity, bowel health, fruit and vegetables, fibre, fluid, alternative therapies and laxatives. To check the patient's understanding of terms used in the PILS and the clarity and accessibility of the information understanding, cognitive interviews (CI) were used with nine patients (selected from 3 GP surgeries), aged ≥ 55 years, who had received ≥ 3 prescriptions of laxatives over 12 months. Interviews were recorded and transcribed. Results: Changes made following the CI process included the lay-out, words used (e.g. 'exercise' was changed to 'activity', 'gut motility' changed to 'bowel movement') and descriptions and examples were adapted to be more appropriate for the target population. Conclusion: Pilot testing with CIs resulted in improvements in the PILs, which emphasises the need to pilot PILs with the target population before use. The techniques employed are relatively inexpensive and could be routinely used when preparing literature for research or clinical use including those intended for use with healthcare professionals and patients.
Citation
Lake, A., Speed, C., Brookes, A., Heaven, B., Adamson, A., Moynihan, P., …McColl, E. (2007). Development of a series of patient information leaflets for constipation using a range of cognitive interview techniques: LIFELAX. BMC Health Services Research, 7, https://doi.org/10.1186/1472-6963-7-3
Journal Article Type | Article |
---|---|
Publication Date | Jan 4, 2007 |
Deposit Date | Jan 4, 2012 |
Publicly Available Date | Aug 26, 2015 |
Journal | BMC Health Services Research |
Publisher | BioMed Central |
Peer Reviewed | Peer Reviewed |
Volume | 7 |
DOI | https://doi.org/10.1186/1472-6963-7-3 |
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Copyright Statement
© 2007 Lake et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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