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Parent insights into atypicalities of social approach behaviour in Williams syndrome.

Lough, E. and Rodgers, J. and Janes, E. and Little, K. and Riby, D. M. (2016) 'Parent insights into atypicalities of social approach behaviour in Williams syndrome.', Journal of intellectual disability research., 60 (11). pp. 1097-1108.

Abstract

Background Individuals with Williams syndrome have been reported to show high levels of social interest and a desire to interact with others irrespective of their familiarity. This high social motivation, when combined with reduced intellectual capacity and a profile of atypical social behaviour, is important in terms of social vulnerability of individuals with the disorder. Therefore, social approach to unfamiliar people and the role of this behaviour within the Williams syndrome (WS) social phenotype warrant further research to inform social skills' intervention design. Methods The current study used parent interviews (n = 21) to probe aspects of social behaviour and interactions with strangers, as well as the impact of such behaviour on the family. Using thematic analysis, it was possible to explore themes that emerged from the interviews, offering qualitatively rich insight into the variability of social approach behaviour in WS. Results Thematic analysis confirmed a significant desire to interact with strangers as well as a lack of awareness of appropriate social boundaries. However, parental reports about their child's social approach behaviour varied considerably. The within-syndrome variability of the sample was emphasised in parental reports of their child's personality characteristics (e.g. levels of impulsiveness), as well as the level of parental supervision employed. Conclusions These in-depth parent insights can help target the needs of individuals with WS and emphasise that an individual approach to intervention will be essential because of the heterogeneity of the WS social profile.

Item Type:Article
Full text:(AM) Accepted Manuscript
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Status:Peer-reviewed
Publisher Web site:http://dx.doi.org/10.1111/jir.12279
Publisher statement:This is the accepted version of the following article: Lough, E., Rodgers, J., Janes, E., Little, K., and Riby, D. M. (2016) Parent insights into atypicalities of social approach behaviour in Williams syndrome. Journal of Intellectual Disability Research, 60(11): 1097-1108, which has been published in final form at http://dx.doi.org/10.1111/jir.12279. This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.
Date accepted:23 February 2016
Date deposited:01 March 2016
Date of first online publication:25 April 2016
Date first made open access:25 April 2018

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