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e-Health diaries for people at end-of-life : "a crutch to lean on".

Wilson, C. and Ormandy, P. and Vasilica, C. and Ali, S. (2016) 'e-Health diaries for people at end-of-life : "a crutch to lean on".', in HIMS'16 : the 2016 International Conference on Health Informatics and Medical Systems, July 25-28, 2016, Monte Carlo Resort, Las Vegas, USA. , pp. 89-95.


The objective of this article is to explore the use of e-Health diaries in palliative care. 68 patients from three hospices in the UK were involved in the study. A sample of 14 patients was selected for diary analysis and focus groups. The qualitative data was examined using thematic analysis and findings exposed the different ways patients used their diaries, who they wrote for and what they revealed about their personalized care needs. e-Health diaries are invaluable at providing the patient with a voice and creating rich information for healthcare professionals.

Item Type:Book chapter
Full text:(AM) Accepted Manuscript
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Date accepted:No date available
Date deposited:30 November 2016
Date of first online publication:2016
Date first made open access:No date available

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