Tracking Transformations in Health Movement Organisations: Alzheimer's Disease Organisations and their Changing ‘Cause Regimes’

O'Donovan, O.; Moreira, T.; Howlett, E.

doi:10.1080/14742837.2013.777330

Tracking Transformations in Health Movement Organisations: Alzheimer's Disease Organisations and their Changing ‘Cause Regimes’

O'Donovan, O.; Moreira, T.; Howlett, E.

Authors

O. O'Donovan

Professor Tiago Moreira tiago.moreira@durham.ac.uk
Professor

E. Howlett

Abstract

In this paper, we aim to contribute to the elaboration of a framework for the systematic periodisation of health social movement organisations (HSMOs). Drawing on historical and contemporaneous data on two organisations that identify as Alzheimer's disease movement organisations (the Alzheimer's Society in Britain and the Alzheimer Society of Ireland), we consider transformations in these organisations' ‘cause regimes’. By cause regime, we refer to who and what an HSMO is fighting for, as articulated in its public self-identifications; to the broader framing of the cause and to how organisations' public self-identifications of their cause can govern or regulate their operation, including their interactions with and representations of those on whose behalf they advocate. We show that the transformation of HSMOs' cause regime can give rise to a series of organisational tensions and challenges, including the alignment of the public identification of its cause with the patient identities it promotes, or its day-to-day ‘patient identity work’.

Citation

O'Donovan, O., Moreira, T., & Howlett, E. (2013). Tracking Transformations in Health Movement Organisations: Alzheimer's Disease Organisations and their Changing ‘Cause Regimes’. Social Movement Studies, 12(3), 316-334. https://doi.org/10.1080/14742837.2013.777330

Journal Article Type	Article
Publication Date	Mar 25, 2013
Deposit Date	Jun 14, 2013
Publicly Available Date	Nov 19, 2014
Journal	Social Movement Studies
Print ISSN	1474-2837
Electronic ISSN	1474-2829
Publisher	Taylor and Francis Group
Peer Reviewed	Peer Reviewed
Volume	12
Issue	3
Pages	316-334
DOI	https://doi.org/10.1080/14742837.2013.777330
Keywords	Health movement organisation, Alzheimer's disease, Cause regime, Periodisation, Patient identity work.

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Copyright Statement
This is an Accepted Manuscript of an article published by Taylor & Francis Group in Social Movement Studies on 25/03/2013, available online at: http://www.tandfonline.com/10.1080/14742837.2013.777330.