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Inspiring change : humanities and social science insights into the experience and management of breathlessness.

Oxley, R. and Macnaughton, J. (2016) 'Inspiring change : humanities and social science insights into the experience and management of breathlessness.', Current opinion in supportive and palliative care., 10 (3). pp. 256-261.


Purpose of review: Breathlessness can be debilitating for those with chronic conditions, requiring continual management. Yet, the meaning of breathlessness for those who live with it is poorly understood in respect of its subjective, cultural, and experiential significance. This article discusses a number of current issues in understanding the experience of breathlessness. Recent findings: Effective communication concerning the experience of breathlessness is crucial for diagnosis, to identify appropriate treatment, and to provide patients with the capacity to self-manage their condition. However, there is an evident disconnect between the way breathlessness is understood between clinical and lay perspectives, in terms of awareness of breathlessness, the way symptoms are expressed, and acknowledgement of how it affects the daily lives of patients. Summary: The review highlights the need for integrated multidisciplinary work on breathlessness, and suggests that effective understanding and management of breathlessness considers its wider subjective and social significance.

Item Type:Article
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Publisher statement:This is an open access article distributed under the Creative Commons Attribution License 4.0, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Date accepted:06 August 2016
Date deposited:09 September 2016
Date of first online publication:01 September 2016
Date first made open access:No date available

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