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Siblings of children with Williams syndrome : correlates of psychosocial adjustment and sibling relationship quality.

Cebula, K. and Gillooly, A. and Coulthard, L. K. and Riby, D. M. and Hastings, R. P. (2019) 'Siblings of children with Williams syndrome : correlates of psychosocial adjustment and sibling relationship quality.', Research in developmental disabilities., 94 . p. 103496.


Previous research has examined adjustment in parents of children with Williams syndrome (WS), but little is known about sibling outcomes. Aims: To explore sibling adjustment and relationship quality, and their demographic, psychological and behavioural phenotypic correlates from the perspective of caregivers and siblings in families of children with WS. Methods and procedures: Forty-one caregivers of children with WS participated in this questionnaire study on the adjustment and relationship quality of the siblings. In 31 of these families, self-report data were also provided by the siblings themselves. Data were also gathered on potential correlates, including anxiety and social functioning in the child with WS, caregiver mental health, and sibling social support. Outcomes and results: Sibling adjustment was similar to population norms, though significantly increased caregiver-reported emotional difficulties were found. Siblings reported greater behavioural, emotional and relationship difficulties than caregivers perceived them to have. Some significant associations were found between the behaviour of the child with WS, sibling behaviour problems and sibling relationship quality. Conclusions and implications: A picture of relatively positive sibling adjustment and relationships emerged, but findings of individual differences and some emotional difficulties emphasise the need for an individualised approach to support in families of children with WS.

Item Type:Article
Full text:(AM) Accepted Manuscript
Available under License - Creative Commons Attribution Non-commercial No Derivatives.
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Date accepted:04 September 2019
Date deposited:09 September 2019
Date of first online publication:21 September 2019
Date first made open access:21 September 2020

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