Fadhila Mazanderani
Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare
Mazanderani, Fadhila; Noorani, Tehseen; Dudhwala, Farzana; Kamwendo, Zara Thokozani
Authors
Dr Tehseen Noorani tehseen.n.noorani@durham.ac.uk
Seminars/Lectures (PTT)
Farzana Dudhwala
Zara Thokozani Kamwendo
Abstract
This paper explores how personal experience acquires the status of knowledge and/or evidence in contemporary healthcare contexts that emphasise being both patient-centred and evidence-based. Drawing on a comparative analysis of three case studies ‐ self-help and mutual aid groups; online patient activism; and patient feedback in healthcare service delivery ‐ we foreground: a) the role that different technologies and temporalities play in how experience is turned (or fails to be turned) into knowledge or evidence; b) the role that experts-of-experience, in addition to the more frequently referenced experts-by-experience, play in mediating how, when and why experience is turned into an epistemic resource; and finally, c) how the need to be ‘evidence-based’ remains a persistent, yet at times productive, challenge to how patient and user experiences are incorporated in contemporary healthcare policy and practice. Throughout the paper, we argue that it is necessary to look at both democratic and epistemic imperatives for including patient and service users in healthcare services and policymaking based on their experience.
Citation
Mazanderani, F., Noorani, T., Dudhwala, F., & Kamwendo, Z. T. (2020). Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare. Evidence and Policy, 16(2), 267-284. https://doi.org/10.1332/174426420x15808912561112
Journal Article Type | Article |
---|---|
Acceptance Date | Feb 4, 2020 |
Online Publication Date | Mar 9, 2020 |
Publication Date | May 31, 2020 |
Deposit Date | May 27, 2020 |
Publicly Available Date | May 27, 2020 |
Journal | Evidence and Policy |
Print ISSN | 1744-2648 |
Electronic ISSN | 1744-2656 |
Publisher | Policy Press |
Peer Reviewed | Peer Reviewed |
Volume | 16 |
Issue | 2 |
Pages | 267-284 |
DOI | https://doi.org/10.1332/174426420x15808912561112 |
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Copyright Statement
This article is distributed under the terms of the Creative Commons AttributionNonCommercial 4.0 license (http://creativecommons.org/licenses/by-nc/4.0/) which
permits adaptation, alteration, reproduction and distribution for non-commercial use,
without further permission provided the original work is attributed. The derivative works do not need to
be licensed on the same terms.
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