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Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions : a scoping review.

Blower, Sarah and Swallow, Veronica and Maturana, Camila and Stones, Simon and Phillips, Robert and Dimitri, Paul and Marshman, Zoe and Knapp, Peter and Dean, Alexandra and Higgins, Steven and Kellar, Ian and Curtis, Penny and Mills, Nathaniel and Martin-Kerry, Jacqueline (2020) 'Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions : a scoping review.', Archives of disease in childhood., 105 (11). pp. 1093-1104.

Abstract

Background: The use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies. Aims: To identify children and young people’s reported concerns or needs in relation to using health technologies to self-manage long-term conditions. Methods: A scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations. Results: Thirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5–18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people’s main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information. Discussion: This review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.

Item Type:Article
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Full text:(VoR) Version of Record
Available under License - Creative Commons Attribution.
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(649Kb)
Status:Peer-reviewed
Publisher Web site:https://doi.org/10.1136/archdischild-2020-319103
Publisher statement:This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. https://creativecommons.org/licenses/by/4.0/
Date accepted:24 April 2020
Date deposited:10 June 2020
Date of first online publication:22 May 2020
Date first made open access:10 June 2020

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