Moral Interests, Privacy and Medical Research

Beyleveld, D.; Pattinson, Shaun D.

doi:10.1007/978-1-4020-8617-5_4

Moral Interests, Privacy and Medical Research

Beyleveld, D.; Pattinson, Shaun D.

Authors

Professor Deryck Beyleveld deryck.beyleveld@durham.ac.uk
Professor

Professor Shaun Pattinson s.d.pattinson@durham.ac.uk
Professor

Contributors

Michael Boylan
Editor

Abstract

This chapter examines the relationship between the values of research and privacy in the context of medical research on patient data. An analytical framework is developed by interpreting the conception of privacy advanced in the jurisprudence of the European Court of Human Rights by reference to the Principle of Generic Consistency, seminally argued to be the supreme principle of morality by Alan Gewirth. This framework is used to uncloak the inequity of positions uncompromisingly prioritising research values over privacy values or vice versa—research worship and consent worship, respectively. We then apply this framework to three hypothetical studies to show how apparent conflicts between research and privacy values can be resolved.

Citation

Beyleveld, D., & Pattinson, S. D. (2008). Moral Interests, Privacy and Medical Research. In M. Boylan (Ed.), International public health policy and ethics (45-57). Springer Verlag. https://doi.org/10.1007/978-1-4020-8617-5_4

Publication Date	Jan 1, 2008
Deposit Date	Jan 26, 2012
Publicly Available Date	Sep 11, 2012
Publisher	Springer Verlag
Pages	45-57
Series Title	International library of ethics, law, and the new medicine.
Book Title	International public health policy and ethics.
Chapter Number	4
ISBN	9781402086168
DOI	https://doi.org/10.1007/978-1-4020-8617-5_4
Keywords	Consent, Interests, Rights, Research, Principle of generic consistency, Privacy.
Additional Information	ISSN of series: 1567-8008 (Print)